DeepSummary
Dr. David Fajgenbaum nearly died multiple times from an extremely rare and incurable disease called Castleman disease, for which there was no effective treatment available. After realizing that the healthcare system does not incentivize finding new uses for existing drugs, especially for rare diseases, he decided to take matters into his own hands.
Driven by his own experiences, Dr. Fajgenbaum realized that many FDA-approved drugs could potentially be used to treat rare diseases for which they were not originally intended. He founded Every Cure, a nonprofit organization that uses AI to match existing drugs with rare diseases they could potentially treat, greatly accelerating the process of finding cures.
Dr. Fajgenbaum's mission is to ensure that every drug is utilized for every disease it possibly can, regardless of profitability. By leveraging AI and partnering with pharmaceutical companies, Every Cure aims to uncover untapped cures and bring hope to those suffering from rare diseases that have been neglected by the current system.
Key Episodes Takeaways
- Dr. David Fajgenbaum nearly died multiple times from a rare and incurable disease called Castleman disease, for which there was no effective treatment available.
- The current healthcare system does not incentivize pharmaceutical companies to find new uses for existing drugs, especially for rare diseases, leaving many potential treatments undiscovered.
- Driven by his own experiences, Dr. Fajgenbaum realized that many existing FDA-approved drugs could be used to fight rare diseases for which they weren't originally intended.
- Dr. Fajgenbaum founded Every Cure, a nonprofit organization that uses AI to match existing drugs with rare diseases they could potentially treat, greatly accelerating the process of finding cures.
- By leveraging AI and partnering with pharmaceutical companies, Every Cure aims to uncover untapped cures and bring hope to those suffering from rare diseases that have been neglected by the current system.
- You can support organizations like Every Cure by donating, spreading awareness, or sharing your own experiences with off-label drug use that has helped treat rare diseases.
- AI and innovative approaches like those used by Every Cure have the potential to revolutionize the way we find treatments for rare and neglected diseases, filling a critical gap in the healthcare system.
- Dr. Fajgenbaum's mission is to ensure that every drug is utilized for every disease it possibly can, regardless of profitability, to help as many people as possible.
Top Episodes Quotes
- “So you're basically peeing for the entire day, for 14 days. And so, like, you pee and then, like, depends on how long you want to wait. Like, do you wait, like, 15 minutes or five minutes, but, like. And you're just back, but it's like. It's crazy. In two weeks, 50 pounds of fluid was urine. I urinated out.“ by David Fajgenbaum
- “So imaging the possibilities for your entire house. Why let your home sit empty when it could be the key to unlocking more adventures? Your home might be worth more than you think.“ by Jordan Harbinger
- “There's only 3000 FDA approved drugs and there's 22,000 diseases, and it's like, I don't know, I think I would have maybe predicted more approved drugs, maybe less diseases, I don't know, but, yeah, but it's incredible.“ by David Fajgenbaum
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Episode Information
The Jordan Harbinger Show
Jordan Harbinger
6/18/24
After treating his own rare disease, Chasing My Cure author David Fajgenbaum explains how existing drugs can help other sufferers survive the unknown.
What We Discuss with David Fajgenbaum:
- Dr. David Fajgenbaum nearly died multiple times from a rare ailment called Castleman disease, for which there was no effective treatment available.
- The current healthcare system does not incentivize pharmaceutical companies to find new uses for existing drugs, especially for rare diseases, leaving many potential treatments undiscovered.
- Driven by his own experiences, Dr. Fajgenbaum realized that many existing FDA-approved drugs could be used to fight rare diseases for which they weren't originally intended.
- Dr. Fajgenbaum founded Every Cure, a nonprofit organization that uses AI to match existing drugs with rare diseases they could potentially treat, greatly accelerating the process of finding cures.
- You can make a positive impact by supporting organizations like Every Cure, which are working tirelessly to find treatments for rare diseases using innovative approaches. Consider donating to their cause, spreading awareness about their mission, or even sharing your own experiences with off-label drug use that has helped you or someone you know. Every contribution, no matter how small, can help bring hope and relief to those suffering from rare diseases.
- And much more...
Full show notes and resources can be found here: jordanharbinger.com/1005
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